It’s hard to believe our girl is one month old already. In one way, time is flying by-she’s 1 month old!! And in another way, it seems that time is standing still, as her progress has been so slow and rocky. Poppy’s chest is still open, and though she is releasing fluids like a champ these days, she may be too unstable to close it.
Poppy had a rough night a few nights ago. She had problems with her cardiac output, leading to poor profusion (blood flow) to her body (kidneys, head, etc.) So in order to help her heart rest and improve profusion to her body, they cooled her down and ‘paralyzed’ her. On Saturday, they turned off the paralytic to see if she had had enough rest, and after 8 hours, there were subtle signs that indicated she wasn’t quite ready, so they turned it back on. Today they have turned it off in hopes she will show them she is ready. Praying she is ready.
This morning at rounds, the doctors discussed her cardiac function, and from the most recent echo (last week), these problems don’t appear to be caused by her heart function. However, they are perplexed as to why she is failing to thrive after so much time. If she is unable to come off her paralytic, they may take her back into the cath lab to get another look to be sure there isn’t something they are missing. Praying she doesn’t have to go back in. Praying she improves enough to keep her away from anymore procedures for a while.
Needless to say, we’re really ready for her to turn a corner. It’s so hard to watch her all cool and sedated-all I want to do is swaddle her up and hold her in my arms. I long for the day I get to hold her again. We just have to keep reminding ourselves that God’s timing is not our timing. He is in control and whatever His timing, is His perfect timing. Timing not understood by us, but perfect.
In celebration of her one month birthday, we (Poppy, mommy, and help from her nurse) did a photo shoot 😉 The patience and sweetness from the nurses with these kind of special little things means so much- a little bit of ‘normal’ in all of this really helps, probably me most of all. But it’s special and just as much of a memory as if we were at home being normal.
Happy 1 Month Poppy girl!! You are doing great!! You are our sweet strong girl and we love you so much! Maybe today you can show everyone you are ready to roll!! 😉
Thank you to all who have emailed Brad about giving of your time to help move us out of our apartment. There are no words to express how much your outpouring of support means to us- we are constantly humbled by God’s provision.
Please pray for:
-Poppy to show the doctors she is strong and ready to come off the paralytic
-Poppy makes enough progress to get her chest closed soon
-Patience as we wait for God’s perfect timing