Poppy is 2 months old already! It is so hard to believe!! She even seems to be growing, which is so encouraging given her fragile state. She weighed 6lbs 10oz at birth and now weighs 7lbs 8oz which is about what Crosby weighed when he was born at 37wks. She’s still so tiny!! I’m praying we get to enjoy her in our arms before she’s not newborn size anymore.
She seems to be tolerating her chest being closed fairly well so far! Praise the Lord!! Honestly, this is a pleasant surprise for everyone involved. Her numbers have actually been pretty good, which is so exciting to see!! Totally a miracle.
Today they did an ERT (extubation readiness test), which is where they turn her breathing support down to see how ready she is to be extubated. She did well for about 30 minutes and then appeared to be working too hard, so they went back to the ventilator settings she was on. Extubation will be the next thing for her to tackle, and the doctors assure us that she will. She just needs lots of practice and growth. There is even talk of the possibility of maybe getting to hold her on Mother’s Day if they think she can handle it!!! I’m trying not to get my hopes up too high, but I am secretly freaking out inside!!! I’m soo excited it’s even being talked about!! 🙂 She hasn’t been in my arms since March 18-needless to say, I am beyond ready!!! Please continue to pray that I get to hold my sweet Poppy on Mother’s Day, and that Poppy continues to have good days and makes decent strides toward extubation.
We are about half way done with the formal evaluation for transplant. We should hear early next week if Poppy is an eligible candidate for transplant. One of the evaluations we are still waiting on is neurology. Please pray that Poppy impresses them 🙂 It sounds like, if Poppy was an eligible transplant candidate at this moment, they would recommend listing her immediately. If she starts to show drastic improvement, then we can always take her off the list, or remain on the list, she may just be moved to a different priority category.
These days have been heavy with emotions and full of information regarding transplant. My mind knows we can do this, my heart knows that God will provide for this in every way, as he always does, but my body is physically ill. We love and appreciate all your prayers, and would specifically ask for additional prayer for this ill feeling I have, as well as guidance and peace for what lies ahead. All we want to do God’s will-pray that we see and hear what He has for us, as He reveals it.