I had asked prior to surgery, ‘so it must be pressing if you want to take her to the OR at 10pm (this is at 4pm)…’ granted, I had seen the images and could see the changes- I was probably asking more for validation…The answer I got was, ‘it’s only been 4 days since her last scan, and all of her ventricles are significantly bigger when comparing today’s scan to the last scan. If Poppy wasn’t so sick, we could wait until morning, but her ventricles have grown so much in such a short time frame, we feel confident that the shunt has malfunctioned and we should take her as soon as she has fasted for long enough.’ I figured, but had to be sure. So so bummed this is happening to my girl who had been through so much. Just sick to my stomach, anxious, and honestly truly sad that I would be sending Brad and Crosby home for the night, once again our family separated…and Crosby melting down because his mom and new sister weren’t coming with 😦 Ugh….breaks my heart every time- even just thinking about it makes me well up.
Poppy got a late start to the OR last night. She didn’t end up going in until around midnight. I didn’t mind a bit- this meant her anti rejection meds could be in on time, not to mention the fact that I will NEVER turn down cuddle time!
Walking her to the OR
Around 1am, Dr. Lee, the attending neurosurgeon came to tell me about how things were going. It was the exact same problem as last time. (So there are 3 main components to the shunt- the catheter that goes into the ventricle, the valve that sits outside and creates the bump on her head, and the drain that runs along the side of her body into her peritoneum.) The valve itself was clogged with blood just like the last time. In the scheme of things, this was great news because all they had to replace was the valve. She said the same thing as far as shunts go that I keep hearing and reading…’some kids can have theirs with no problems for 10-15 years, while other kids can have as many as 12 revisions in one year- it really comes down to luck and Poppy has so far just had really bad luck.’ I could tell she was disappointed to have had to put Poppy through another surgery, but was glad they were able to tackle it promptly.
Poppy came back to her room around 3am resting comfortably. She had brief wake period through the early morning, and seemed to move her eyes and head really well. She’s been resting ever since. Thank you Jesus!! Typically, most patients would be discharged today after a surgery like this, but because this is Poppy, it’s sounding like they want to keep her 12-24hrs post-op. I guess I can’t blame them, and I want what’s best for her of course. But I may try to add merit to the fact that I have caught each malfunction and see if they would let her go later on the evening since I’m soo good 😉 Wishful thinking, I know but I guess we will see how the day goes.
Once again, thank you all for your never ending prayers for our sweet girl. It’s as if you all are riding this crazy roller coaster ride with us, and it’s honestly comforting to have such loving support. We pray that she continues to rock her recovery and for her shunt to last her years!!