Poppy had rough night. She was super fussy and a little vomitty. Her ND tube
(feeding tube) was also trying to find the proper placement in the duodenum, but was getting caught in her tummy all day/evening, it didn’t finally migrate to her duodenum until around midnight. Because she’s not used to her tube being in her tummy, we all thought this irritability and vomiting was due to her tube not quite in the correct spot. She honestly cried for 7 hours last night, nothing seemed to help. And just to add, Poppy is not colicky, she is typically a very sweet and chill baby- very very consolable. Finally she passed out around midnight. Totally thought it was all about her feeds and gas and…and..and. She was the same neurologically, so….
This morning the nurse practitioner from neurology came to check in. Poppy was fussy and had vomited a couple of times. I told her about the feeding tube ordeal and she said, ‘lets just rule out that its not her shunt!’ Brad and I were impressed that she was willing to be so thorough, especially on our way out the door…or so we thought.
Scans came back to show the ventricle that we came in for originally was so far holding! So that’s really good!!! They will continue to monitor it closely, but for now it seems that the external drain that was placed emergently Thursday and later taken out yesterday, was just what she needed. Praise God!
But, the ventricles that were always draining and were looking really good upon arrival of this hospital stay, are now at least 50% bigger than they were 2 days ago, and there is blood around the shunt itself. The only way to solve this problem is to go in and replace whatever part of the shunt system is clogged from the blood. 😦 So, in true ‘Poppy fashion,’ here she goes to the OR again…!!!!! Ahhh!!! She goes in an hour. We are learning first hand what it means for your kiddo to have a shunt. Life with a shunt can be this way- some malfunction, some last 6 weeks/months, 3 years, 15 years, no rhyme or reason- it’s just the way of having a vp shunt, and it’s worth it of course because it’s saving her life.
We are so disappointed that she is heading back in to neurosurgery, but at the same time, we are so very grateful this was caught while we were still here in the CICU-thank you Jesus for providing such thorough top notch care for our girl.
We are praying for a safe, timely, and successful surgery for our girl- for her to come back without a breathing tube, and for her brain to find some relief and drain perfectly!!
Romans 12:12 -my favorite
‘Be joyful in hope, patient in affliction, and faithful in prayer.’
Lord, we don’t understand why..what the reason is for all of this…this rough course Poppy has been on, but we do know that You have this, we have seen You at work in so many ways and as we always strive to do, we cling to You and Your love and goodness. We know Your will is best and we bring you glory in all things, because You love us so. Lord, we ask You to please guide the hands of the medical staff and protect our daughter from harm. We pray for a successful trip to the OR, and for a speedy recovery. Please surround us with Your presence and may we find rest in Your Divine peace. Amen.