Poppy had a great cardiology appointment this week!!! Thank you Jesus!! Her physical exam was great! She is now 15.5lbs and in about the 45th percentile for height, weight, and head circumference!! Dr. Law said she looked ‘beautiful!’ This is actually really good coming from Dr. Law- he is very careful with his words, and is not known for saying things just to say them… 😀 And no rejection!! Praise God!! Feeling so incredibly blessed!! 🙂
At the appointment, I asked Dr. Law about moving her feeding tube from her small intestine to her tummy, in hopes that she would tolerate it, thus one step closer to weaning off the tube. He asked me if I thought she would tolerate it, and I said ‘I really do-I think it’s worth trying!’ He said ‘ok!’ The next thing I knew, the transplant nurse was in to make the adjustment!! She did great and is doing amazingly well with the change!! Woohoo!! Hallelujah! We are also down to every 6 hours on her hydromorphone wean!! She is doing so awesome!!
We try to practice purée 3x a day and she takes anywhere from 2-4 baby spoonfuls each time! I know it doesn’t seem like much at all, but for her right now, it is her max. We just keep practicing…it seems like each day she shows is something new- it’s pretty amazing.
Right now, we are really trying to focus on head/neck strength, so much to her dismay, we are doing a lot of tummy time. She’s also getting good at bringing her hands up to her mouth and sucking on them a little!! Brad tried a teething ring and she loved it! She’s becoming more verbal and offering more smiles everyday- it’s just so cool to see her flourish 🙂 Thank you Lord- You have made this all possible!!!