Poppy had a fabulous visit with Neurosurgery on Monday, so we were on our way immediately after her appointment! The Neurosurgery NP Mandy, said that this fine tuning of the shunt settings is really very common and can be just part of having shunts for a lot of little ones. She was quick to reflect back on just how far she’s come since that trip to the ER back in July, that landed her emergently into the OR that same day. Perspective!! Yes!! Love it!! Her head images are closer to normal than we’ve ever seen!! Hallelujah!! The roads were not ideal, but we made it back safely Tuesday late afternoon. Thank you for all your prayers!! 😊
She has shown us in so many ways that she is indeed feeling better!! Thank you Jesus!! She is now tolerating the feed rate she’s been on for months!! She was able to work herself up fast!! I have to say, I was nervous and disappointed about her sudden regression, because we’ve been working so hard. Praising God for His goodness and mercy for this tremendous blessing!!
We’ve also seen her really improve in her physical abilities. She is actually able to spend more time on her tummy and will reach for toys in front of her and has shown us subtle ‘swimming’ movements!!! I mean, is this a soft sign that crawling is of interest to her?! And sitting…she WANTS to sit up SOoo bad!! Even in her car seat (yes, most of the way home from Seattle), she absolutely insisted on leaning forward to play, instead of lounging back and bringing her toys to her!! She is definitely gaining core strength and it is SOoo exciting!! Obvious improvement- praise God!!
She is also more interactive and smiley!! She IS the sweetest ❤️ We are soo relieved and excited to have her ‘back!’ Thank you Jesus!!
It’s kind of one of those things where, when her regression seems gradual, it’s easy not to see it all at once, especially when you are with her all the time. But when she’s back to herself, the regression becomes so apparent. It’s crazy. Thank you Lord for blessing us with such a fabulous medical team that trusts me and my ‘gut’ feelings, and who have the discernment to know when it’s time to take the trip…