G-tube Surgery Update

I had hoped to update sooner, but we’ve been …well, busy. He came out and said that the procedure went perfectly!! Hallelujah!! My girl finally has a G-tube!! 😊 Words truly could not express what a divine victory this is for our girl!! Big big day!!! 😊

Dr. Goldin and Dr. Browd decided that instead of moving shunt tubing to make room for the g-tube, that Dr. Goldin would instead, move her stomach. This was music to my ears, as my main concern came with touching the shunt tubing and infection risk with that. They decided that this option was safer over all and they both felt it was the right thing to do! !!! Hallelujah!! Soo so incredibly thrilled!!

Poppy was upset in recovery, so I was allowed to go back and attempt to console her. She was in a lot of pain, and still coming out of anesthesia. After an hour or so, and some morphine and tylenol, she seemed ready to rest, so we began the transfer to the floor. Upon getting there and getting settled, she decided to hold her breath and began to turn blue, only never caught her breath, becoming unresponsive. She had to be bagged. Her oxygen sats dropped to the 40’s (normal is 95-100%) That, in all my days of staying with her in the hospital, she’d NEVER done that. She will old her breath briefly at home when she’s very upset, but immediately catches her breath and it’s over. My girl was blue and because the nurse had to bag her (give her rescue breaths) she called a code blue. Within seconds she had 20 people in her room, many of which are CICU nurses and doctor. After talking it over, they decide she is not ready for the floor and needs to go back to recovery and let the anesthesia wear off a bit more. We went down and I held her the whole time. After 3 hours of groggy sleeping and intermittent crying, with a tiny bit of oxygen help, and no de-satting, we were ready to go back to the floor….or so we all thought.

She had just received more tylenol and all of a sudden she does it AGAIN!! Not responsive, arching her back and turning blue, oxygen sats dipping in the 20’s this time. No patting or sound or anything could make her catch her breath- she looked at me like she was stuck and scared 😞 Bagged again, code blue..again. With that, it was up to the CICU for observation. No doubt the Lord’s hand is all over this. The staff who surrounded us today was indeed Divine. I’m so incredibly overwhelmed by the Lord’s unfailing provision. It’s just so humbling and obvious and unexplainable. This hospital is family to our sweet girl, and it’s just indescribable. Goosebumps…tears…gratitude..joy. God has surrounded us with His presence, it is clear. Thank you for all your prayers ❤️

The thought at this point is that she’s at the developmental stage of holding breath when upset, coupled with coming off of not so ideal anesthesia (she usually has no problems- and she’s been put under umpteen times!!) is the culprit. Into the evening, she began to perk up and had some more appropriate awake time. Thank you Jesus for this, because if she hadn’t been more responsive and interactive, they were looking at ordering a head CT just to rule out shunt issues. Up until this point, she seemed very out of it neurologically. But she gave us this time of being tired but appropriate which was such a tremendous relief- thank you Lord!! Since then, she felt she just had to initiate her poor night nurse, and thought she’d do it again!! This time dipping into the 50’s and turning blue. She is sleeping now and being closely watched. We are hopeful that tomorrow, the anesthesia will be worn off and we can feel good about moving to the floor!! Praying this is all it is. Thank you all for your prayers ❤️

IMG_5460.JPG

IMG_5463.JPG

IMG_5468.JPG

IMG_5467.JPG

IMG_5471.JPG

IMG_5469.JPG

IMG_5466.JPG

8 thoughts on “G-tube Surgery Update

  1. Ohhhhhh Christi how terrifying for you to grow through this and for sweet brave Poppy!!! I’m glad you know God was with you both through it all!! I feverishly pray tomorrow will be so much better and the worst is behind you yet again!!

  2. again your faith is incredible!!! that is some rollercoaster for you! Praise the Lord Poppy is ok…hope she grows out of this holding her breath right away!!! Prayers continuing for you and Poppy and family.

  3. In spite of all she’s been through she is such a beautiful baby. We’re so sorry that this procedure has been so trying for all of you. The Lord continues to watch over. Prayers sent for speedy recovery for Poppy and peace and comfort for the rest of you as she heals.

  4. What a sweet example, reading this, of Ps.28:7 ” The LORD is my strength and my shield; in Him my heart trusts, and I am helped. With my song I give thanks to him.”
    How could you ever go through this without HIM? Precious, precious Poppy.

  5. Prayers for your sweet baby. This truly made me cry, bringing back memories of when Livi (Britt and Aaron Rich’s daughter) coded after open heart surgery. It is so scary! Keep strong in Christ, for it is truly through Him that we are able to make it through such turmoil. He is holding Poppy in His hands and will help her to recovery. Blessings to your family!

  6. We thinks and prayer for you often. When our niece was in the NICU for 4months we learned about walking by faith and not by monitors. God is with you. Rest in Him.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s