I had hoped to update sooner, but we’ve been …well, busy. He came out and said that the procedure went perfectly!! Hallelujah!! My girl finally has a G-tube!! 😊 Words truly could not express what a divine victory this is for our girl!! Big big day!!! 😊
Dr. Goldin and Dr. Browd decided that instead of moving shunt tubing to make room for the g-tube, that Dr. Goldin would instead, move her stomach. This was music to my ears, as my main concern came with touching the shunt tubing and infection risk with that. They decided that this option was safer over all and they both felt it was the right thing to do! !!! Hallelujah!! Soo so incredibly thrilled!!
Poppy was upset in recovery, so I was allowed to go back and attempt to console her. She was in a lot of pain, and still coming out of anesthesia. After an hour or so, and some morphine and tylenol, she seemed ready to rest, so we began the transfer to the floor. Upon getting there and getting settled, she decided to hold her breath and began to turn blue, only never caught her breath, becoming unresponsive. She had to be bagged. Her oxygen sats dropped to the 40’s (normal is 95-100%) That, in all my days of staying with her in the hospital, she’d NEVER done that. She will old her breath briefly at home when she’s very upset, but immediately catches her breath and it’s over. My girl was blue and because the nurse had to bag her (give her rescue breaths) she called a code blue. Within seconds she had 20 people in her room, many of which are CICU nurses and doctor. After talking it over, they decide she is not ready for the floor and needs to go back to recovery and let the anesthesia wear off a bit more. We went down and I held her the whole time. After 3 hours of groggy sleeping and intermittent crying, with a tiny bit of oxygen help, and no de-satting, we were ready to go back to the floor….or so we all thought.
She had just received more tylenol and all of a sudden she does it AGAIN!! Not responsive, arching her back and turning blue, oxygen sats dipping in the 20’s this time. No patting or sound or anything could make her catch her breath- she looked at me like she was stuck and scared 😞 Bagged again, code blue..again. With that, it was up to the CICU for observation. No doubt the Lord’s hand is all over this. The staff who surrounded us today was indeed Divine. I’m so incredibly overwhelmed by the Lord’s unfailing provision. It’s just so humbling and obvious and unexplainable. This hospital is family to our sweet girl, and it’s just indescribable. Goosebumps…tears…gratitude..joy. God has surrounded us with His presence, it is clear. Thank you for all your prayers ❤️
The thought at this point is that she’s at the developmental stage of holding breath when upset, coupled with coming off of not so ideal anesthesia (she usually has no problems- and she’s been put under umpteen times!!) is the culprit. Into the evening, she began to perk up and had some more appropriate awake time. Thank you Jesus for this, because if she hadn’t been more responsive and interactive, they were looking at ordering a head CT just to rule out shunt issues. Up until this point, she seemed very out of it neurologically. But she gave us this time of being tired but appropriate which was such a tremendous relief- thank you Lord!! Since then, she felt she just had to initiate her poor night nurse, and thought she’d do it again!! This time dipping into the 50’s and turning blue. She is sleeping now and being closely watched. We are hopeful that tomorrow, the anesthesia will be worn off and we can feel good about moving to the floor!! Praying this is all it is. Thank you all for your prayers ❤️