Yesterday, Poppy went into surgery to have her vp shunt revised. In trying to keep Poppy’s hydrocephalus controlled with just 1 shunt, the thought was that perhaps the current placement of her shunt was to blame for the ventricle that wasn’t draining. So in surgery today, they took out her original vp shunt, and placed one just like it on the left side, in hopes that this new position would drain all the ventricles appropriately.
We spoke with Dr. Browd right after surgery, and he said things were pretty straight forward-he was overall so far pleased. During the procedure, he had injected some dye in order to get an idea if the new placement had done the job of allowing all ventricles to drain. He said the post op CT would show where the dye was able to go, and would give them an idea of what would be the next move.
I got up to Poppy’s room to find her still intubated 😦 Apparently in the OR they had tried to extubate her (take her off the ventilator she was only on because of surgery), and probably because of her rhino virus (cold) she needed to be reintubated. I also learned pretty quickly, that the post op CT scan showed that no dye was able to get into the problem ventricle, meaning the position of the shunt was not the reason after all for all of this.
Ugh…I just wanted to throw up…I’m finding it hard to catch my breath…we were both so utterly disappointed..so she’s sick, immunosuppressed, off her blood thinner (lovenox) in order to do all of this without the concern of bleeding, intubated, and chances are, she will need to go in a 3rd time to get an additional shunt to specifically drain the problem ventricle. The feeling of defeat was overwhelming, even though she has been in waaaayyy worse situations than all of this. It was definitely a challenging afternoon for both of us. A couple of our favorite nurses were so encouraging-their words were just what we needed to hear. Reminding us that it’s ok to be disappointed, she’s been through so much… but to pray-and they are right on. Trying every second to just give it over-He knows what He’s doing ALL of the time.
Later in the evening, they were able to take the breathing tube out and put her on nasal cannula. Praise God!!! Brad stayed with her last night because I missed Crosby and really needed a break. I need a break to just try and digest all of this, and surrender all to God…the whole thing…
I arrive this morning to find my girl still not herself. Irritable and seemingly sedated at the same time-only she’s not on any extra sedation-her eyes still not conjugate (together). Neuro says her CT today looks good so far and really can’t explain why she’s not herself-that it will just take time and watching for the next few days to see what the next move will be.
It is so hard to see my baby like this- we were just getting to know her…but this is her today, and we can still get to know her like she is today- because she’s our precious girl and we love her so much..really, what kid is the same every day- they are always growing and changing…
We find rest in knowing and believing with our entire being, that she is in the Lord’s arms and we are by her side loving her through it. We are surrendered…we are on our knees asking God to heal our girl and to carry our family through this as He always has. Please pray for God’s peace to surround us and for God’s healing hand to touch our girl.