I have been so blessed to be able to hold and spend time with my little girl. I spent the entire morning talking a reading to my Poppy. I am really excited to have Christi join me at the Children’s Hospital. I’ve missed her a lot, even though were only a mile and a half away it seems like much longer. I had the opportunity to meet with many of the doctors and nurses that are taking care of my little girl and the have explained many things to me along the way. I would have to say that I am really very impressed with the staff up to this point. They all take time to talk to me and answer any of my questions no matter how simple they are. Along the way they have continued to spend a little time explaining Poppy’s particular HLHS heart condition to me. Here is what they said to me.
I created the labeled the drawing to help explain her heart and what the doctors are concerned about.
A- This is one of the valves to Poppy’s heart. Although it is working the doctors have noticed a slight restriction in blood flow throw this area. this could be caused by a slight thickening of the tissue.
B- This is the Pulmonary Valve. This is the area that has caused the most concern for the doctors. The area with the red circle is the valve. In normal patients, the valve is a tricuspid valve (meaning three parts) but this valve is only bicuspid (two parts). The concern for this is that it often times leaks. In Poppy’s case, it only leaks a very small amount. At this point, the doctors say that they will monitor but they are likely going to continue surgery as normal.
C- this is the Aorta. in a normal heart, it would roughly be the same size as the pulmonary artery. Poppy’s is much smaller much like the picture. The doctors say that there is little to no blood flow through this vessel. This is a concern but doctors seem confident that they can deal with it.
D- This is the left ventricle. this is the part of Poppy’s heart that gives us her syndrome. The left ventricle is very small. There is a small amount of blood flow into this area of the heart. With Poppy’s heart the blood is flowing in but the doctors are unsure exactly where the blood is leaving. Poppy needs prayer that this doesn’t turn in to a more serious issue. There is another ECHO scheduled tomorrow to try to figure out where every thing is and get a better picture of her heart.
Doctors and Surgeons will meet on Monday to discuss the Surgery and discuss everything and make a plan for surgery. Please pray for wisdom, and guidance as the doctors discuss our Poppy girl.