It’s been a few days since our last update because things have been pretty stable for our girl! 🙂 The medication she is on for her seizures (phenobarbital) is at a level that controls her seizures and was delivered slowly so her heart seems to be doing just fine with it!! Praise The Lord! She will have another EEG tomorrow to ensure it remains at a level that maintains control of her seizures. She will have an MRI when she’s stable enough (probably after her chest is closed and she’s extubated) to get a better look at her brain.
Overall, the doctors seem fairly happy with her! They keep saying her progress is much slower than they’d like but she’s progressing, so that’s something! We’ll take it! Praise Jesus! She is still super puffy from surgery, so her goal right now is to pee A LOT so she can get her chest closed! It’s been open since March 18!! As soon as she can release enough fluid, she’ll be ready to get it closed! Our prayer is that she pees A LOT and SOON!! 😉
There is still some hint of transplant from the surgeons, but for now Poppy is holding her own so they are going with it! Only time will tell.
We feel so blessed to be in such a great place with such caring and dedicated staff. Everyone has been absolutely amazing. God continues to reveal Himself in crazy ways. Many nurses agree that Poppy is already a miracle baby 🙂 Dr. Hardy has been in such great contact through this whole thing- even calling our cell phones just to check in! And Dr. Vernon has even gone out of her way to stop in and check on us as well! We are blown away every day by someone’s thoughtful generosity and encouraging words-lately by so many we don’t even know. God is so good. Thank you all for your dedication to our sweet baby girl. Words cannot express how much it means to us to be so prayerfully supported.