Some more detail about Poppy’s second round in the OR:
They decided to go back to the OR, because they were able to see (while in the Cath lab on Tuesday), that there was narrowing in her aortic arch, which appeared to be contributing to the severe regurgitation in her tricuspid valve. The surgeons went in with the intent of widening her aortic arch and with possibility of doing something extra to help the regurgitation in her tricuspid valve if at all possible.
Dr. Permut (surgeon), came out beaming, as did all the doctors watching. He said ‘it went as well as we could have hoped for!’ Praise The Lord!! She went into surgery on ECMO, and came out off ECMO!! Thank you Jesus!! While in there, they were able to widen her aortic arch, but still saw that there was severe regurgitation in her tricuspid valve. So they went back on bypass to get a better look. They found that her tricuspid valve itself is abnormal and actually found a tear. Dr. Permut was able to put a small stitch in to try to reinforce it. He explained that’s about the only approach to fixing it, shy of a heart transplant. He says the regurgitation is now at a moderate level and could improve on it’s own, but may not. A heart transplant may be sooner than later for Poppy, but only time will tell. For now, it looks as though she is tolerating it! These post-op past few days have been leaps and bounds better than the first go around- thank you Lord!! We have so much to be thankful for- so thank you all for your fervent prayers!!! God has surely made His presence known 🙂
It has been such a blessing to have Crosby back with us! He helps remind us to take mental health breaks, and to get out and spend some time together-keeps us smiling, that’s for sure! What a character 😉
We do however, have a new prayer request. After the surgery, Poppy’s routine cranial ultrasound, showed an inter cranial hemorrhage, followed by more seizures. She’s been on a combination of anti seizure medication since her first seizure episodes last week. Now the amount of seizure medication Poppy needs to stop seizing, could actually compromise her cardiac function. Last week, they were able to wipe out her seizures completely with the anti seizure meds because her heart was supported being on ECMO. But now that she’s off of ECMO, she doesn’t have that additional heart support, they are unable to completely wipe out her seizures, because the dose she needs to wipe them out is too hard on her heart. It’s that ‘two steps forward, one step back’ thing all the nurses warn us about.
This is the main reason this update has been so delayed. I haven’t been able to breathe really since hearing about the new brain bleed. It’s like I can’t catch my breath-a big lump in my throat. It’s so hard to watch my sweet innocent baby girl go through all of this. 😦 It just breaks my heart 😦 I know God has a special plan for Poppy and His love for her is infinitely more than I am even capable of, and what a comfort it truly is to know that He has her- she is His precious child- and He has her wrapped safely in His arms. God has all of this covered -I have to keep reminding myself of that, because my heart just breaks for her…..
With Easter coming, I’m reminded of how even God knows our suffering in this. He watched His own son suffer and die on the cross for everyone- even people who hate(d) Him, so that those who choose to live for Him, don’t have to spend eternity in hell-they get to spend eternity in heaven with Him. He surely knows suffering…
We pray that:
-Her bleeds would not grow
-Her seizures would stop
-Safe and timely recovery so we can bring our family home!! 🙂