March 29

Some more detail about Poppy’s second round in the OR:

They decided to go back to the OR, because they were able to see (while in the Cath lab on Tuesday), that there was narrowing in her aortic arch, which appeared to be contributing to the severe regurgitation in her tricuspid valve. The surgeons went in with the intent of widening her aortic arch and with possibility of doing something extra to help the regurgitation in her tricuspid valve if at all possible.

Dr. Permut (surgeon), came out beaming, as did all the doctors watching. He said ‘it went as well as we could have hoped for!’ Praise The Lord!! She went into surgery on ECMO, and came out off ECMO!! Thank you Jesus!! While in there, they were able to widen her aortic arch, but still saw that there was severe regurgitation in her tricuspid valve. So they went back on bypass to get a better look. They found that her tricuspid valve itself is abnormal and actually found a tear. Dr. Permut was able to put a small stitch in to try to reinforce it. He explained that’s about the only approach to fixing it, shy of a heart transplant. He says the regurgitation is now at a moderate level and could improve on it’s own, but may not. A heart transplant may be sooner than later for Poppy, but only time will tell. For now, it looks as though she is tolerating it! These post-op past few days have been leaps and bounds better than the first go around- thank you Lord!! We have so much to be thankful for- so thank you all for your fervent prayers!!! God has surely made His presence known πŸ™‚

It has been such a blessing to have Crosby back with us! He helps remind us to take mental health breaks, and to get out and spend some time together-keeps us smiling, that’s for sure! What a character πŸ˜‰

We do however, have a new prayer request. After the surgery, Poppy’s routine cranial ultrasound, showed an inter cranial hemorrhage, followed by more seizures. She’s been on a combination of anti seizure medication since her first seizure episodes last week. Now the amount of seizure medication Poppy needs to stop seizing, could actually compromise her cardiac function. Last week, they were able to wipe out her seizures completely with the anti seizure meds because her heart was supported being on ECMO. But now that she’s off of ECMO, she doesn’t have that additional heart support, they are unable to completely wipe out her seizures, because the dose she needs to wipe them out is too hard on her heart. It’s that ‘two steps forward, one step back’ thing all the nurses warn us about.

This is the main reason this update has been so delayed. I haven’t been able to breathe really since hearing about the new brain bleed. It’s like I can’t catch my breath-a big lump in my throat. It’s so hard to watch my sweet innocent baby girl go through all of this. 😦 It just breaks my heart 😦 I know God has a special plan for Poppy and His love for her is infinitely more than I am even capable of, and what a comfort it truly is to know that He has her- she is His precious child- and He has her wrapped safely in His arms. God has all of this covered -I have to keep reminding myself of that, because my heart just breaks for her…..

With Easter coming, I’m reminded of how even God knows our suffering in this. He watched His own son suffer and die on the cross for everyone- even people who hate(d) Him, so that those who choose to live for Him, don’t have to spend eternity in hell-they get to spend eternity in heaven with Him. He surely knows suffering…

We pray that:

-Her bleeds would not grow
-Her seizures would stop
-Safe and timely recovery so we can bring our family home!! πŸ™‚



24 thoughts on “March 29

  1. Poppy my thoughts and prayers are with you everyday little one!!! You have fought this hard to come this far.Evidently you have a very special job here on earth!! So keep on fighting and show everyone miracles do happen!!

  2. Oh my heart is aching for you POPPY if only I could take your place I would NO BABY should have to go through this sweety, I pray for you to stay strong lil one & keep fighting as lots of us are fighting for you also. xxxxxxxxxxxxxxxx
    THe TRappel & Riley families

  3. During this Easter time, your family, especially Poppy, are fervently in my prayers. Easter is a healing time and a time of new beginnings and I pray that this will also be what lays in store for you! Keep kissing that adorable son of yours! This must be oh so confusing to him. Thank you for your heartfelt and difficult updates. It allows us all to continue our prayers for Poppy’s recovery. God Bless you and have a very special Easter.

  4. Oh that sweet precious little baby. God be with you all as you endure this awful trial. So thankful you are believers & that you have your faith to hold onto. God IS greater than any human circumstance & I am praying you will continue to see & feel REAL evidence of Him. May He bless you immensely with His strength, His comfort & His peace……

  5. I read this this morning, and thought of your dear family….still praying for Poppy’s healing and your strength.

    β€œI AM TAKING CARE OF YOU. Trust Me at all times. Trust Me in all circumstances. Trust Me with all your heart.When you are weary and everything seems to be going wrong, you can still utter these four words: β€œI trust You, Jesus.” By doing so, you release matters into My control, and you fall back into the security of My everlasting arms. Before you arise from your bed in the morning, I have already arranged the events of your day. Every day provides many opportunities for you to learn My ways and grow closer to Me. ” – Jesus Calling, by Sarah Young

  6. Christi and Brad,
    I feel like you have been 40 days in the desert with our Lord and we know there is Resurrection! You all come to my mind often and when you do I stop and pray! He has a plan and He will bring it to fruition, of this I am certain. You are a beautiful family and I am truly blessed by you all! Poppy God bless you precious baby!!

  7. Many times during Kamryn’s stay at the hospital I felt as if I was on the end of a YoYo. Her health was so up and down, one day good the next not so much. The only thing that kept the YoYo from stoping or going out of control was God. I knew He was in complete control of her health and life. He would chose what was best for her. It was then, in the complete surrender of her life that he brought He plan together. As a mom the hardest thing to give up is control. But God has her in His hands and will take good care of her. We are praying for her and for you and your family. It is so hard, I know.
    3 Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, 4 who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.
    2 Corithians

  8. The poppies on the altar will be replaced by Easter Lillies tomorrow….fitting. But I have put poppies on my desk at work now. And am still praying for Poppy, your family, and the medical team. God has this….as you have said so many times Christi… Rest in His care…. Love You..

  9. Thank you Steven for your message to all of us who are praying for the precious one and her family . Tomorrow brings hope and with this I pray for the healing of this pure soul .Jesus was reresurrected on this day ,I pray Poppy will begin to heal as well. I pray in Jesus Name …..Melodee and Max

  10. Amen Amen Amen! LOVE how you brought up that God understands what you are going through because of what He allowed His Son to suffer on our behalf. Verses that have REALLY encouraged me to remember that Jesus “gets it” and understands is Hebrews 4:14-16.

  11. Christi, thank you for the update on Poppy and thank you all for your prayers for our precious grandaughter. We are reminded this Holy Week that Jesus truly did pay the ultimate sacrifice for the sins of the world. In the Old Testament God commissioned Moses to deliver the children of Isreal from the bondage of the Egyptians and in the New Testament Christ was sent to deliver us from the bondage of sin. The resurrection which we celebrate tomorrow is the affirmation that this has been accomplished. Thank you God that the power of the reserrection lives in us as well. He said in the Bible that only two things would live forever 1. The Word of God 2. He that does the will of God (to believe on the name of His Son (Jesus). Be of good cheer Jesus has overcome the world.
    In a few hours I will be spending some time with my grandchildren in Bozeman. Shelley and me are so blessed to have grandchildren that we truly cherish in every way and want them to know we love them and that God does too. Please continue to pray for Poppy , Christi , Brad, and Crosby
    Ask that God through Christ his Son would strengthen them through his Spirit and His Word which will abide forever, love Grandpa Steven.

  12. God Bless your whole family. Jesus has Poppy tight in his arms and i pray that Jesus heals her, and i pray that Poppy gets better day by day in Jesus name i pray, Amen.

  13. God does know and feel your pain!! I love the Footprints poem – one set of footprints in the sand means he is carrying you in your time of need!! Your faith in God is outstanding!! I’m not sure I would not waiver going through all your going through!! The sun is shining today and Spring is close at hand!! I pray Poppy will continue to grow like spring flowers (slowly and delicately) nurtured by all of you and our Lord!!

  14. Easter is always a tender time for me, renewing my faith and hope in the resurrection of Christ and through him that all men might be saved; knowing that he conquered death that we might live again is everything my hopes are hinged on after losing my newborn son 3.5 years ago to his heart defect. So many prayers and thoughts of comfort and peace be with you and with sweet little Poppy. I want to add to your testimony that He knows suffering. My testimony is that he personally knows your suffering, and her suffering and he is with you through all of it, weeping with you as he did with Martha when Lazarus died- knowing her pain and anguish. I am so thankful for Him and I will offer a special Easter prayer for your family.

  15. Dear Brad & Christi,
    Just want to say Happy Resurrection day! What a wonderful which gives us hope for the future. Our prayers have been with all of you. What a precious little girl. I just saw her today at Ron and Darlene,s today. It must be encouraging to know how many prayers go up each day for all of you and we know God in His mercy hears us.
    Love you all and God keep His loving arms around all of you.

    Love and God bless! Great Aunt Ingeborg
    Great Falls, MT 59404

  16. Brad and Christi – I’m thinking of you on Easter and everyday of this difficult journey. I’m inspired by your courage and your strength. I’ m sure you must be mentally and physically exhausted and while I know its easier said than done but may you find peace and rest in God.

  17. You are constantly in our thoughts and prayers. Thank you so much for taking the time to update us all. All our love your way!

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s