We had a chance to sit down and visit with the surgeon who will be doing Poppy’s surgery, Dr. Permut. He sat with us for like 2 hours! He went over everything from the beginning, and told us about the meeting that happened Monday. He was so thorough and patient with our questions-definitely the kind of doctor you want to have working on your precious child. He did inform us of his concerns with Poppy’s particular issues and said that had her pulmonary valve been leaking any more than it is, they would probably be going with the hybrid surgery option
( preparing her heart for a transplant). This hit Brad and I both pretty hard, even though we knew it was between the two (hybrid or Norwood), we hadn’t realized it was such a close call. He assured us that it was a great discussion amongst the best of the best and the overall consensus was the Norwood. We are so thankful that a heart transplant is not in Poppy’s near future, and that is a blessing! Praise the Lord! Poppy continues to be tolerating her breathing well so no hood yet, just the bilirubin lights for her jaundice.
Poppy’s surgery is set for Monday at 8am. The only thing that could postpone it would be if she catches something or if a transplant should come in for another patient. In a way it’s a relief to have a surgery date but at the same time, it’s so hard to think that on Monday, Poppy will go in looking like a perfectly healthy newborn and come out an intubated, completely sedated baby with an open chest (they close the chest up after a few days until the swelling goes down, then they close. And, just to be clear on that, the chest IS covered by a sterile dressing, that you can kind of see through). The visual is killing me. I remember on our tour of the hospital seeing a baby with an open chest in one of the CICU rooms and it took my breath away. In fact, a cardiologist today told us to sit down right away when we do see her, and if we wanted, we could have the nurse cover her with a blanket if we’d like. Whoa…hard to imagine our sweet Poppy in this state is beyond explainable. All of this just for her to have a chance….so scared for what’s ahead, but I keep reminding myself that it’s all in God’s hands- and praying may His will be done- may He be glorified through it all.
Crosby is back in MT and seems to be having a blast! We miss him soo much 😦 but there is a sense of relief knowing he is well cared for and getting what he needs attention wise. We are spending all our time with Poppy, talking to her, holding and cuddling as much as possible. Just trying to soak her in before her big day. I can’t wait until we are back together as a family-for now this is the best we can do and I’m becoming more and more ok with that. Oh the life lessons I am learning….making me a better momma and wife 😉 What a blessing.
In addition to Poppy’s upcoming surgery, please continue to pray for us that we would allow God to have this and help us to find rest in Him.