Surgery: Monday 8:00am

We had a chance to sit down and visit with the surgeon who will be doing Poppy’s surgery, Dr. Permut. He sat with us for like 2 hours! He went over everything from the beginning, and told us about the meeting that happened Monday. He was so thorough and patient with our questions-definitely the kind of doctor you want to have working on your precious child. He did inform us of his concerns with Poppy’s particular issues and said that had her pulmonary valve been leaking any more than it is, they would probably be going with the hybrid surgery option
( preparing her heart for a transplant). This hit Brad and I both pretty hard, even though we knew it was between the two (hybrid or Norwood), we hadn’t realized it was such a close call. He assured us that it was a great discussion amongst the best of the best and the overall consensus was the Norwood. We are so thankful that a heart transplant is not in Poppy’s near future, and that is a blessing! Praise the Lord! Poppy continues to be tolerating her breathing well so no hood yet, just the bilirubin lights for her jaundice.

Poppy’s surgery is set for Monday at 8am. The only thing that could postpone it would be if she catches something or if a transplant should come in for another patient. In a way it’s a relief to have a surgery date but at the same time, it’s so hard to think that on Monday, Poppy will go in looking like a perfectly healthy newborn and come out an intubated, completely sedated baby with an open chest (they close the chest up after a few days until the swelling goes down, then they close. And, just to be clear on that, the chest IS covered by a sterile dressing, that you can kind of see through). The visual is killing me. I remember on our tour of the hospital seeing a baby with an open chest in one of the CICU rooms and it took my breath away. In fact, a cardiologist today told us to sit down right away when we do see her, and if we wanted, we could have the nurse cover her with a blanket if we’d like. Whoa…hard to imagine our sweet Poppy in this state is beyond explainable. All of this just for her to have a chance….so scared for what’s ahead, but I keep reminding myself that it’s all in God’s hands- and praying may His will be done- may He be glorified through it all.

Crosby is back in MT and seems to be having a blast! We miss him soo much 😦 but there is a sense of relief knowing he is well cared for and getting what he needs attention wise. We are spending all our time with Poppy, talking to her, holding and cuddling as much as possible. Just trying to soak her in before her big day. I can’t wait until we are back together as a family-for now this is the best we can do and I’m becoming more and more ok with that. Oh the life lessons I am learning….making me a better momma and wife 😉 What a blessing.

In addition to Poppy’s upcoming surgery, please continue to pray for us that we would allow God to have this and help us to find rest in Him.

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17 thoughts on “Surgery: Monday 8:00am

  1. Hi there, you couldn’t have had a more beautiful daughter, She is beautiful and as a child of the King, she is in His hands. Praying for you and especially for the surgical team as they undertake this surgery. Praying that you are getting enough rest as Monday will be a long day. Just remember that you are not alone, but Jesus is with you.

  2. Still praying without ceasing…I’m sure your Momma’s heart is breaking for her. Such amazing news about the surgery!!! Tears of joy for you guys. “Then you will experience God’s peace, which exceeds anything we can understand. His peace will guard your hearts and minds as you live in Christ Jesus.”
    ~ Philippians 4:7, NLT
    Smooch Poppy for us! 🙂

  3. What a beautiful girl! Been keeping up on little Poppy, and praying each night for her 🙂 Good luck on Monday! She is absolutely just perfect!

  4. She is just the prettiest little thing… so feminine and petite. I can’t imagine seeing her that way either but do know what my daughter’s been through with her baby and it’s truly miraculous what the doctors can do. I’m praying for you and your extended family as well as you all pass through this storm. It IS scary and God understands.

  5. We too have been in a similar situation to yours. Our daughter was born last year in May and was immediately taken to Seattle Children’s. We spent a week in the NICU and then we spent quite a bit of time in the CICU. Dr. Permut saved my daughters life. He is an amazing man. Trust in him but most of all trust in the Lord. Your faith is strong and you CAN get through this! Even when you don’t feel strong keep putting one foot in front of the other. Lean on the Lord. Learn as much as you can. Study what levels are important BMP, BUN etc. When I was in your shoes and my other kids were with their grandparents, I made everything about this situation my job. You and your husband can do this!!

    If you are ever outside of the Family Resource Center, to the left is a bulletin board. On that board is a little girl named Hannah Mae. That is my daughter. She had to have a new heart to live.

    If you ever need someone to listen to you, I would love to.

    Prayers are with you, Jennifer

  6. I don’t know you but Jan Rasmussen has shared your story so just wanted to let you know that I am lifting you and Poppy up in prayer. God bless you on this journey.

  7. God is being glorified by your trust in Him! Prayers for Poppy, you, and her medical team continue to abound in Conrad. Love you ALL. Kim Wiest

  8. Always thinking of Poppy and all of the family!! May God guide the doctors hands and protect Little Poppy through her surgery. Lifting Poppy up in prayers and know that she is in wonderful, caring hands. Love to all of you….

  9. Praying that Poppys’ surgeons will receive guidance from the almighty healer. You are all in our prayers. May you all feel the love of God.

  10. Poor baby:(. What a hard thing you guys are going through. She is such a doll. She is in our hearts and prayers!

  11. She is adorable. We are praying for all of you. The surgery is tough. I’m glad you are prepared. I still remember, however, how shocked we all were after my nephews Norwood with how he looked. It will be upsetting, but just remember it is in her best interest. We are here for you and praying for you every day. Good luck and get well soon Poppy!!!

  12. Dear Christi, Brad, Crosby and Poppy – You are in our hearts and prayers every day, and will be especially prayed for on Monday morning. Yesterday, little John told me that we have to “pray for Poppy” so our little kids are on your side. I also know my dad is up there saying special prayers for your little girl. She is beautiful and looks like a fighter. With Easter approaching, I am thinking about new beginnings and new life. We will be praying that this surgery gives Poppy the second chance she needs. I am inspired by your faith. Also, I sent your blog to several moms at my church, and you are being prayed for fervently. You’re a good mommy!

  13. What a beautiful, precious little daughter of the King! We are thinking of all of you and lifting your family up in prayer.
    “So do not fear, for I am with you; do not be dismayed for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.”
    Isaiah 41:10

  14. Christi, is there anyway to make a donation on the website? Or am i able to send a check to Ramsey made out to you all? Keeping you all in my prayers!

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