Poppy has been a little off the past week. Although she is technically ‘stable-ish,’ she has been more sleepy, greyish in color, tachycardic (higher heart rate), and has had poor profusion (blood flow to her body). When she opens her eyes, she just looks like she doesn’t feel good 😦 Poor baby- all she’s been doing for the past week is sleep, really only opening her eyes when she’s getting her hygiene, then right back to sleep. 😦 Brad came back from MT and the second he saw her he was sick to his stomach. He said, ‘that’s not how I left her; she looks so sick :(‘ Ugh, this breaks my heart just revisiting that moment 😦 She is fighting so hard. 😦 She’s so tired. 😦
Yesterday, a member of the transplant team joined us for rounds. Neither of us were really surprised by this given the visits with Dr. Permut we’ve had in the past and her current state. We’ve been told that this is really just to start getting them familiar with Poppy, should she go that route. Basically, the doctors are baffled as to why she is not recovering. They are constantly ruling out infection and trying everything they can think of to help her recover, and she’s still ‘not thriving’ as they call it. At this point, they aren’t even sure if she will ever be able to tolerate chest closure with her natural heart. Physically, there seems to be no problem closing her chest, as they had her closed for 20 minutes the last time they tried, but hemodynamically, she has struggled, prompting them to open her back up and try the wound vac for a more gradual closure. Since they have ruled all else out, the issue is more than likely her heart, probably more specifically, her tricuspid valve regurgitation. The plan for this week is to change out her wound vac dressing again today, check everything out while they are in there, and hope to attempt chest closure Friday-sort of one last try before developing a new recovery plan. In some way, it’s kind of a relief to have the doctors who specialize in chronic heart failure involved, but in a bigger way, it’s so humbling for your sweet innocent child to be in chronic heart failure at 7 weeks old. 😦
We know that she is resting in the Lord’s arms and oh soo loved and cared for. She is His child. Thanks to all who are praying for us. Even as we grieve, we surely feel His presence.