A few days ago, the surgeons attempted to close Poppy’s chest. She made it clear she just isn’t quite ready yet. She was closed for about 20 minutes- they watched her blood pressure plummet and her heart rate skyrocket. So they opened her back up and were able to put a smaller patch on. While they were in, they cleaned her up and added back her atrial wires (should she need to be paced given her crazy arrhythmias). Overall, they were still glad they tried. Needless to say we were disappointed, but God’s timing is perfect and that is what we cling to. Poppy’s chest will get closed eventually and I’ll get to hold my precious girl once again. That day can’t come soon enough.
Today, Poppy got wound vac put on her open chest. A wound vac is kind of a sponge looking thing that has a tube attached that is actually hooked up to suction. It is supposed to whisk away fluid and the sponge itself is actually supposed to promote healing. The hope is that this tool will bring her chest closer gradually, which seems to be the way Poppy likes things 😉 This girl is definitely teaching us all a lesson in patience! Hopefully she will respond well to this! So far she is looking pretty good! Praise Jesus! Dr. Permut is hopeful they may be able to try closing her chest again next week!
Yesterday I said goodbye to my boys for 10 days 😦 I miss them already 😦 They are headed back to MT to move out of our apartment, as Poppy’s recovery has no timeline at this point. The doctors have validated our decision to be in limbo for a while. Poppy is going on 33 days with her chest open. Ideally, she would have been closed a few days post op, and we would be on our way home in a week or two. Poppy has already been through so much, and has so much more to overcome just with her heart.
-wean off the ventilator
-wean off heavy meds
-learn how to eat
All while maintaining stability. Once her heart is in an ok place, neurology will tackle her brain (get an MRI and assess the damage) and plastics in conjunction with orthopedics will address her big toe (amputation). She has a long road ahead. We take it day by day-it’s all we can do.
While all of this is overwhelming and brings tears to my eyes, there is no doubt of God’s presence. He continues to provide us with the peace and patience we need to go on, and continually surrounds us with people who love Him. Awe and wonder….getting goosebumps (which I call the Holy Spirit 😉 are a daily occurrence. Every day there are instances where He shows us He is with us, and the glory is His. Pretty amazing…we are where He has us, and His timing is perfect. Thank you Jesus. Help us to never forget.
Bye boys 😦
Poppy is infatuated with her IV pumps